Real Life: ‘I’m a children’s worker in a wheelchair’

I was diagnosed with limp-girdle muscular dystrophy when I was 12. It is a muscle-wasting disease, so your muscles get weaker until you get to a point where you can’t walk or lift up your arms. I was walking, but differently from any other child at the time. I didn’t use a wheelchair until 1993 when I went on holiday with my parents, but my muscles have got worse over the years. 

Sarah: When Mark and I married, we knew we would love to have children of our own. But to do so would mean using a wheelchair full time. I used to fall...

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